On Memorial Day 2010 at the age of 12, Leandra was running on a sidewalk with a friend and twisted her ankle. She was treated for a severe sprain and put in a boot for three weeks. Several times over the next 8 months she would improve and begin activities, and the ankle/foot would start hurting and the doctors would put her back in the boot.
By January of 2011 her pain was unbearable and so severe that she wasn't sleeping. Further testing was done and she was diagnosed was Complex Regional Pain Syndrome (CRPS). She has undergone nerve blocks, physical therapy and other treatments which only brought temporary relief and sometimes no relief at all. This has been a long journey of 6 years. We are praying and looking for a miracle. We long to see the day that Leandra will be able to enjoy a normal life again, and be able to go places with friends, enjoy activities and sing with her family.
There is a recently FDA-approved procedure that is promising for CRPS patients, called "Dorsal Root Ganglion" spinal cord stimulation. At this time we are actively pursuing this treatment for her.
Her wish is to go on a Disney Cruise.
Leandra's going away party at Scarborough's.